Eva’s Friends is now closed

Thanks to your fantastic support and generous donations we raised over £50,000

Our supporters ran, cycled, baked, bowled and swam. 

 Children fundraised at school, donated their pocket money and even asked for donations in place of birthday presents. 

 Our supporters held and attended supper clubs and made regular monthly donations to our 1 in 20,000 campaign. 

 We were supported by clubs and businesses, big and small.  

To you all, from the bottom of our hearts, thank you!


Since the inception of Eva’s Friends our focus moved towards funding research to find a cure for Rett Syndrome, a serious lifelong neurodevelopmental condition which affects mainly girls. We worked hard to ensure that your donations made the biggest impact by running the charity as efficiently as possible. Costs were kept below 1.5% of total income, which enabled us to maximise the grants awarded. Thanks to your donations Eva’s Friends was able to fund a cutting-edge research project at The Cobb Lab at the University of Edinburgh, which is developing a second generation gene therapy process that has the potential to cure Rett Syndrome as well as other genetic diseases.  

We would like to thank you again for all your help and support and leave you with some words from Dr Stuart Cobb:

We are grateful for... [the] support which has enabled us to drive forward our efforts to develop an innovative form of gene therapy for Rett syndrome. Our trans-splicing therapy replaces the faulty MECP2 gene without the drawbacks of traditional forms of gene therapy. With the most recent award... we are excited to be able to test new ways to enhance the effectiveness of the approach. We are upbeat about our work and are optimistic that a genetic therapy for Rett syndrome will become a reality in the years ahead

The Cobb Lab, The University of Edinburgh


If you would like to find out more about Rett Syndrome or ways in which you can support vital research to help find a cure for Rett Syndrome please visit

reverserett.org and reverserett.org.uk 


Registered as a charity in England and Wales. Charity number 1176031

© Eva's Friends 2020