Friends was founded in November 2017. We are a small organisation,
but in time we intend to have a big impact.
set out in our constitution, the object of the charity is: “the
relief of sickness and preservation of health of children with rare
neurological conditions by the provision of funds for research into
the prevention and treatment of such conditions provided that all
useful results are disseminated to the public”.
plain English, this means that Eva’s Friends
will make grants to individuals and organisations so that they can pursue a range of cutting-edge research that the charity’s trustees deem has the potential to ultimately provide treatments and cures for rare neurological conditions in children. We aim to select the very best projects which are most likely to make a
difference to the field of paediatric neurological research.
We are in the process of setting up a collaboration with the Rett Syndrome Research Trust (RSRT) who fund an established global network of research teams dedicated to finding treatments and cures for Rett Syndrome. By working with RSRT, Eva's Friends is able to leverage RSRT's extensive resource base to allocate funding quickly and efficiently. Once the details of this collaboration are finalised, the first grant that Eva's Friends are hoping to make will fund an exciting project that has huge potential, not just for the treatment of Rett Syndrome, but for many other conditions.