Become one of Eva's Friends

Match Me

Does your place of work run a Match Me scheme?  Can you make a donation and then have it matched to increase the original amount?  If this is something you can do we'd love to hear from you!  Send us an email at  

Own a business?

Would you like to become one of our sponsors and help play a vital part in funding research into rare neurological conditions in children?  If you're reading this thinking "Yes I would!" please get in touch at

Got your own fundraising ideas?

If you would like to fund raise on our behalf we would love to hear from you!  Whether it's walking, running, swimming, climbing, eating spaghetti, a street art paint jam, or shaving off your beard there are no limits!  Let your imagination run wild and see how much money you can raise.  Drop us a line at and let us know what you would like to do and we'll support you in any way we can.

Coming soon...   Be 1 in 20 000.  Each of us has an estimated  20 000 genes and Eva has a variation in just one of them!  This variation has an impact on her life every second of every day.  To highlight this, we aim to encourage 20 000 people to set up a standing order for just £2 a month and be 1 in 20 000, just like Eva's genetic make up. Due to launch in spring 2018.  Watch this space...